Privacy Policy

Welcome to the Canadian Rare Disease Network. We are committed to safeguarding your privacy. This Privacy Policy outlines how we collect, use, disclose, and manage your personal information when you visit our website and use our services.

Information We Collect

Personal Information: When you register for our newsletter or express interest in membership, we may collect personal information such as your name, email address, and any other information you voluntarily provide. Please be advised that this site makes every effort to protect your personal information. You can choose to unsubscribe from these communications at any time.

How We Use Your Information

When users sign up for our newsletter and membership, we use this to craft and tailor targeted information. This is helpful in reaching individuals and organizations that may be looking for specific information to help them with their needs. We may use data for analytical purposes to understand trends and user preferences.

Sharing Your Information

We do not sell, trade, or rent your personal information to third parties. However, we may share your information with trusted third-party service providers who assist us in operating our website and providing e-services to you. These e-services consist of receiving our monthly newsletter and expressing interest in membership when you sign up. These service providers will assist in maintenance of these e-services. These service providers are contractually obligated to maintain the confidentiality and security of your information.

Security

We implement appropriate security measures to protect your personal information against unauthorized access, alteration, disclosure, or destruction. However, no method of transmission over the Internet or electronic storage is 100% secure, and we cannot guarantee absolute security.

Cookies

Cookies are files with a small amount of data, which may include an anonymous unique identifier. Cookies are sent to your browser from a web site and stored on your computer’s hard drive.

Like many sites, we use “cookies” to collect information. You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if you do not accept cookies, you may not be able to use some portions of our website.

CRDN website collects cookies that allow us to use the service ‘Google Analytics’, a web analytics service provided by Google. Google Analytics allows us to measure our website user interactions. You can learn more about Google’s Privacy & Terms here.

Links to Other Websites

This site contains links to other websites and resources. We do not control other websites and our privacy policy does not apply to those websites. We recommend reading the Privacy Policy of the respective website you visit.

Changes to this Privacy Policy

This Privacy Policy is effective as of February 22, 2024 and will remain in effect except with respect to any changes in its provisions in the future, which will be in effect immediately after being posted on this page.

Contact Us

If you have any questions or concerns about our privacy practices, please contact us at info@canadianrdn.ca.