Rare Lives, Shared Strength
Connecting Canada’s rare disease community to advance rare disease care, research, and innovation both in Canada and worldwide.
The Canadian Rare Disease Network (CRDN) is a pan-Canadian, cross-disciplinary network that unites the country’s leading clinical, scientific, and patient expertise to address the unique challenges faced by the millions of children and adults affected by rare diseases in Canada.
Pillars of Our Work
The work within the CRDN is strategically centered around 3 interconnected pillars that are focused on addressing the key challenges faced by rare disease patients and families.
Diagnostics & Registries
Reduce the time it takes to identify rare diseases.
Innovative Therapies
Expanding treatment possibilities.
Care, Support & Empowerment
Supporting patients and their caregivers.
Rare Disease Day
Rare Disease Day is an awareness event that takes place every year on the last day of February, February 28 or February 29 in Leap Years—the rarest of calendar dates to underscore the nature of these diseases.
There are many ways to get involved in Rare Disease Day.